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Exposing Women’s Experiences with Von Willebrand Disease: A Case Study of Online Support Groups

Abstract This research explores the unique and complicated experiences of women living with Von Willebrand Disease (VWD). VWD occurs with quantitative or qualitative deficiencies in Von Willebrand Factor—a key protein involved in blood clotting. While VWD affects men and women, women often suffer harsher complications because of menstruation, childbirth, and other women’s health issues. Using online VWD support groups, this research recognizes and attempts to understand the common experiences of women with VWD. Availability of Care, Motherhood, Community and Sisterhood, Girlhood, Sexual Health and Reproductive Health, and Stigma were the six common themes found within these online support groups. Women in these groups corroborate the current underst... (more)
Created Date 2016-12
Contributor Reynolds, Aubrey Bryanna (Author) / Haskin, Jennifer (Thesis Director) / Gemelli, Marcella (Committee Member) / School of Social Transformation / School of Life Sciences / Barrett, The Honors College
Subject Phenomenology / Women's Health / Reproductive Health / Stigma / Sexual Health / Mental Health / Von Willebrand Disease
Series Academic Year 2016-2017
Type Text
Extent 53 pages
Language English
Reuse Permissions All Rights Reserved
Collaborating Institutions Barrett, the Honors College
Additional Formats MODS / OAI Dublin Core / RIS

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